About us Stories Marjorie's Story Marjorie is seventy years old, has a learning disability and experiences severe anxiety. She lives with her twin sister and her sister's husband, both of whom also have learning disabilities. Marjorie was diagnosed with endometrial cancer and referred to a specialist gynae-oncology team for advice and treatment. Marjorie is able to communicate her wishes and feelings verbally, but can become distressed and has difficulty concentrating and retaining information when she is anxious. The consultant in charge made a referral to POhWER for advocacy support as, although Marjorie had capacity to make her own decisions regarding treatment options, it was felt she would benefit from advocacy support. Noelle, a POhWER independent advocate, met with Marjorie and explained her role. Marjorie was understandably extremely anxious about having cancer and struggled to take in information from medical staff. Noelle attended several hospital appointments with Marjorie and took time after each one to go through with Marjorie what had been said. Noelle liaised with the hospital's Learning Disability Nurse to request information explaining the various treatment options in easy-read format. Noelle went through them with Marjorie a number of times and allowed her to take her time in understanding the information and making a decision. Marjorie decided she was willing to have a laparoscopic hysterectomy as long as adequate support was in place. Noelle and the Learning Disability Nurse were able to facilitate this support. Marjorie had the surgery and it was successful. After the surgery, further treatment in the form of a 5-week course of radiotherapy was recommended. Noelle explained to Marjorie about the treatment and asked how she felt about having it. Marjorie said, "No, I couldn't cope with that." Noelle supported Marjorie to make her views known. The consultant determined Marjorie was able to make the decision not to go through prolonged radiotherapy treatment and that instead she would be offered regular outpatient check-ups to monitor her health. Marjorie thanked Noelle for all her help. With advocacy support Marjorie’s healthcare right to be involved in planning and making decisions about her health and care with the care provider and her right to be given information and support to enable her to do this was upheld. Her rights under the Mental Capacity Act to be presumed to have capacity and supported to make a decision were also upheld.